Showing posts with label Emma and Hope. Show all posts
Showing posts with label Emma and Hope. Show all posts

Sunday, January 22, 2012

2011 Photo Highlights of my 9 Daughters

Newspaper photo of Daddy Daughter Dinner Dance 
Emma wins the dance competition
Dad collapses on the floor afterwards (but it was worth it)

What, your Mr. Potato Head doesn't have a feeding tube?

Not bad for a girl who was supposed to be quadriplegic
If you're wondering how she got up there, I was wondering the same thing

Sometimes Miracles Hide luncheon for moms with special needs children
Somebody had their hands full

So thrilled at the progress one of our caregivers made with Emma using simple alphabet blocks

Hope on Easter BEFORE she ate a bunch of candy

Mother's Day

People look at this and think, at least she can always dream.
I look at it and think, why stop at dreaming. That girl won a dance contest.

Hope in a Box

Emma is a quad and can't sit upright so the caregiver improvised and used her special needs swing

Yard sale treasure

The state provided us with a ceiling track lift system but
I'm not sure this is what they had in mind
One of the caregivers babysat so Laura and I could have a night out.
We went to Stevie's dance performance. It was awesome!

Camping with 2 daughters, both with same brain injury
One quadriplegic and blind

the other does everything other children her age do

Emma is baptized
Shoulda seen the look on the pastor's face when I answered his question,
"You don't want to dunk her do you?"

Decisions, decisions, decisions

We did a lot of camping this year
and met another girl in a wheelchair.
We had wheelchair races every night
to the delight of all the other campers.

Joni & Friends disability family camp
For the first time we were the insiders instead of the outsiders looking in

Joni & Friends disability family camp
World's greatest weight loss program. Be a caregiver for Hope for a week.

Joni & Friends disability family camp
Special time with dad

Joni & Friends disability family camp
Emma loves square dancing

Dad loves Emma

Joni & Friends disability family camp
We were treated like royalty

Joni & Friends disability family camp
If only the rest of the world could be as happy as Emma...

Emma returning to where she was baptized

Miracle Baby Reunion
They really do save a lot of kids but I don't think even Dr. Hope can save this one

At the library
What's up, chicken butt?

Hide and Seek with new ceiling track lift system

And you think it's a big deal your 3-year-old isn't potty trained yet
And this is just a 90 day supply

Fun before the school bus arrives

Proof Hope isn't always the world's most hyperactive kid

They said she would never walk but they never said anything about flying

Better watch out for the left hook
Emma about to demonstrate her legacy of

having 3 sisters with black belts in taekowndo

Emma discovers her hand

A real train equipped for a wheelchair!

Emma, the light at the end of my tunnel

What do you get for her birthday for a kid who can't hold a toy in her hand?

Chillin' with my 17-year-old

Emma is legally blind
What better gift for her than the gift of light

Breakfast with 5 of my 9 lovely daughters


Friday, January 20, 2012

One of those One-Sided Mornings

It was one of those mornings. When Emma arrived home from school the bus driver informed me one of her shoes was missing. My mind quickly brought forth images of frantic people searching the school and the bus and panicking because it's a quadriplegic child who can't speak and she has to have both shoes and both AFOs (orthotic devices) to do her physical therapy.

I quickly assured the bus driver Emma had both shoes when she got on the bus so it wasn't me but, for appearances sake, I quickly searched the house. Oops, there the missing shoe was right in the middle of Emma's hospital bed. 
As stupid as I felt for that, it only got worse as I quickly realized I had also only shaved one side of my face.

Now, you're probably wondering how anybody could possibly be that dumb so let me explain. Months ago I googled "psycho child" and it came back, "There is hope," and that's the problem, my other brain injured daughter, Hope. While Emma is a quiet as a mouse, 5-year-old Hope is, how do I say this tactfully, not, as evidenced by the multiple police reports that have resulted from innocent bystanders  wondering, "what the #$%^l was that," and calling 911.


So there you have it. Hope was in fine form this morning going psycho because there was a spot on her shirt, her old fart of a father was trying desperately to get both girls ready for school before their school buses arrived, and things fell through the cracks. Well, at least I didn't fall on my crack. I've already done that numerous times due to a balance problem and don't want to do it again. Did I just imply I'm unbalanced?

Now, if you'll excuse me, I think I'll go shave the other side of my face.

Wednesday, January 18, 2012

Food for Thought



Two children, both born with the same brain injury, both with the same prognosis. One ends up profoundly disabled, quadriplegic, legally blind, unable to even hold a toy in her hand, and unable to eat so she has to be fed with a feeding tube. The other walks, talks, and does all the things other kids her age do.



What is it that disables a person? Is it their diagnosis or is it disbelief and discrimination? Emma is quadriplegic but she won a dance contest. Her sister was so clumsy she broke her own arm in two places and, for four years, never won a fight. But she never once threw in the towel and ended up at the martial arts world championships.



Unintentional Exclusion: A new handicap parking space but a bicycle rack blocking a wheelchair's path to the restaurant. A handicap accessible bathroom at a university but can't get to it because of five steps. Is there something you don't know about in your life that is a barrier to the disabled?

Some compare Emma against themselves and she comes up lacking. Others compare where she is to where she was and she comes up an example. Others see her example and marvel at where she will be tomorrow. "but they measuring themselves by themselves, and comparing themselves among themselves, are not wise." King James Bible - 2 Corinthians 10:12

Some say it can't be done. Some say I'll try. Some say I don't know how. Some say what if I fail? Others don't care what others say and persevere until they overcome. Which are you?

How far would you go to steal from the disabled? It may be a convenience to you but to a person in a wheelchair it means waiting until you return so they can get into their vehicle.

Freedom isn't Free. It's paid for in blood by the sacrifice of others. I have a friend and fellow veteran who survived Pearl Harbor. He has friends who didn't. Many have paid that price so the rest of us may be free. How have you used your freedom and what have you done to honor their sacrifice?

What have you done to teach your child about the disabled?

God may have the whole world in his hands but, to the severely disabled child, you are the world and her future rests in your hands. What have you done to make the world a better place for her?

They say when you die you see a light at the end of the tunnel. I've already seen that light, in a disabled child incapable of hate, greed, violence or lust. Wouldn't the world be a better place if we were all like that?

Some achieve through skill or talent. The disabled achieve through determination, perseverance, and strength of character. Kinda makes you wonder, is it they or we who are the disabled?